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Parkinson's Comunity Radio

More Than Just a Radio Station
Together we Strive

Program Schedule
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FEATURES

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How To Listen.

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Listen Again

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Shaky Radio News

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Listeners Poems

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Shaky Sanctuary

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Listeners Art

Parkinson's Information

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Parkinson's Information

A libruary of Information Sheets to Download on All Aspects of living with Parkinson's

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Medications

Information on Medications used to Treat Parkinson's 

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Exercises

A Collection of exercises Specific to Parkinson's

Listeners Blogs 

A selection of Our Listener Blogs
If you have a blog and would like it featured then Please contact us 

OUR AWESOME TEAM

Presenters

Rob Keene 

"If ever anybody was born to be a radio presenter it was probably me because I was quite
convinced I was born with a pair of headphones over my ears. Entertaining has always come
quite naturally to me for some reason. Even when I was at school I was always involved in
some form or other with stage production or the performing Arts. And then, of course, came the
unlikely dream of becoming a rock star and I was in various bands until I had to make a decision
a to whether to get a degree or pursue my musical ambitions. Unfortunately, I chose education.
Then at the age of 19, I started to develop the first signs of Parkinsonism and have had it ever
since. Well over 40 years but at least I'm still around to fulfil my lifelong ambition of presenting
my own radio show which is what I have subsequently done.”

John Scotter

One 3am and Shaky Radio was born as an idea. Now some 6 moths later we have a team of volunteers who contribute programming idea and skills. Next step is Charitable Status!

I have been in the backgrowned of a number of radio based projects throughout my life. Prsenting the odd show now I hope PD willing to have a regular show on Shaky Radio. 

Heather kennedy

Heather Kennedy is the founder of Kathleen Kiddo, an advocacy site offering resources and connection through social media. An entertaining speaker known for her unique talks and film presentations about living with Parkinson’s, Heather writes from her home near SF, CA. Since her diagnosis in 2011, she has collaborated with organizations such as the Davis Phinney Foundation, The Cure Parkinson's Trust and The World Parkinson's Congress. In 2020, Heather expects to release two books, one on how to approach grief and a vivid collection of short stories. To book a speaking engagement, email her at [email protected]


Tony Da

Tony Da is a musician and a passionate music aficionado, who lives in the English Midlands. He has been involved in music, in one form or another, for most of his life. Having founded his first band at the age of 15 with local friends, he has been in numerous bands in an amateur or semi-professional capacity since then as well as performing and singing in amateur dramatic groups. He has sung lead vocals and played guitar and bass over the years, mainly on local pub and club circuits. The catalyst for his interest in performing came with the punk movement of the 1970’s, which shook-up the music establishment and showed him that it was possible to make music even with the most basic tools, as long as you had the enthusiasm to try. However, prior to that, and to this day, he has a keen interest in a wide, variety of music ranging from blues to progressive and heavy rock, from jazz to classical and from indie to folk, as witnessed by his large, eclectic, record collection. He has written many original songs over the years and is currently one half of, Echofinity, who continue to write and record, original work, to this day. Having been diagnosed with PD in 2014 he stepped back from performing and works as a studio based musician, and enjoys sharing his musical choices with you on Shakyradio.

OUR AWESOME TEAM

Julie Walker

I was diagnosed at 44 in 2012 with young onset Parkinson's disease (YOPD).
Today, seven years diagnosed, I try to remain positive and concentrate on what I can do, rather than dwelling on what I can’t.

In January 2017 I invented a word; Parkinality; Parkin(sons) (person)ality. I started a website about living with YOPD, www.parkinality.co.uk, which has links to all parkinality projects .

My latest project is as a contributor to Shaky radio, reading poetry and talking about my PD life.

Since 2017 I have a blog, YouTube channel, Facebook page, and a monthly column in the Bishop’s Stortford Independent Newspaper, along with various interviews.
Andy Johnson and I have co-written a play, ‘These Three Words’ which reached the final of a local playwright competition. It highlights the effect a diagnosis has on friends and family.

I am also writing my second poetry book. The first, The Parkinality Poetry Book was published in July 2019.
This first book has a subtle message, hoping it will appeal beyond the Parkinson's community.
I write and perform at local festivals and open mic nights. 30% of monies from royalties earned going to The Cure Parkinson’s Trust.

I cannot cure PD, but I can raise awareness, to create more understanding and highlight the urgent need for a cure.

Ian Scarrett
(DJ Scazza)

Born in 1961 and live in Birmingham, U.K.
I was diagnosed with Parkinson's in 2014 (aged 53) but want to use that as a springboard for something on my bucket list - which I didn't even know I had!
I always wanted to play music to people in the hope that they'd hear something that they thought was brilliant- so thank you, Parkinson's. I am part of the group called young people living with Parkinson's which is reaching out in particular to working age people with or affected by Parkinson's living in Birmingham, Solihull and beyond.
I want to bring a mix of great music from Birmingham, the West Midlands and beyond together with information that I hope will be useful to those with, or affected by Parkinson's living in the West Midlands.
If you would like to be involved by telling your story of how Parkinson's has affected you please
get in touch. If you are involved in something that is Parkinsons related, like research, official groups or non medicinal related, and that you think others might be interested in, please get in touch. If you just want me to play your favourite track, then ask me. But there is more chance of me playing your request if you can give me your Parkinson's related story.
Contact me [email protected] marking it for dj Scazza 

Steve Heart

Steve Hart hosts the Cool Nights Jazz show every week. Listeners enjoy Steve’s selection of upbeat and smooth jazz, his take on the week’s news, there’s the Cool Cut of the Week, listener requests, and a quiz.

Before training to become a journalist, and working in the newsrooms of both Essex FM and BBC Essex, Steve was a professional club DJ working across Essex, London and Kent.

Residencies included Zero 6, Zhivago’s, Electric Blue, and High Society in Southend. Kent clubs included the iconic Nero’s 2000 (Ramsgate), Oceans 11 (Hythe), and Woody’s (Sheerness). London gigs included regular appearances at the Hilton Hotel’s function suite.

In tandem with his club work he spent more than three years as a presenter at Radio Top Shop hosting shows almost every day. He also hosted shows as a volunteer at Southend Hospital Radio, and did breakfast at Radio Basildon.

Steve works as a freelance writer, voice over artist, and podcast producer. He has written three books; the most recent of which are Podcasting Made Easy and a science fiction title called Mayan and The Legion of Alice.

You can show your appreciation with a donation of your choice.


Jim Stevens

Like many radio presenters of a 'certain age', I caught the radio ‘bug’ when I listened to the British ‘pirate’ sations in the 1960s on my transistor radio. The jingles were my favourite part and ‘Big L’ had the best ones (and I’m now proud to say that I have some personalized versions on my show!).In the seventies, I started broadcasting on a hospital radio station in Surrey and one of my shows won a national competition for best hospital radio programme. Noel Edmonds was one of the judges!In 1976, I became a Butlin's redcoat entertainer presenting music and chat from their Radio Butlin studios at Clacton in Essex. Great fun, but very hard work. In the 1990's, I did the weekday morning show on Eclipse FM which broadcast on cable and FM. One of our directors was the legendary Dave Cash.A couple of years ago, I did a spell on the weekday afternoon show of a commercial station at the seaside in East Sussex. My most embarrassing moments in radio were interviewing Bo Didley who insisted I call him ‘Mr. Didley’, and when I interviewed the comedian Richard Digance and I got a nose-bleed halfway through!I now really enjoy presenting my weekly Happy Hour show – and I hope you’ll enjoy listening to it!www.happyhourshow.weebly.com

OUR AWESOME TEAM

Janette Dunridge

Exercise is medicine for everyone, but even more so for those with PD. Personalised exercise programmes address your unique symptoms & improve confidence. 

Steve Algar

Dave Watkins

Dave Edwards

Dave Edwards has been associated with the world of Radio Broadcasting for over 40 years, having started as many do, in Hospital Radio. He was one of the driving forces behind the formation of The Loughborogh Hospitals Broacasting Service (LHBS) back in 1975.
In fact Dave was the Station Manager for several years.

Dave has, over the years, worked for both Commercial and Publicly funded radio stations both here in the UK, as well world-wide.
He started as a Studio Assistant at BBC Radio Leicester in 1976.
He was used as a Commercial 'Voice Over' talent on Radio Trent in Nottingham and Mercia Sound in Coventry in the eighties.

Having grown up in the Sixties, and having experienced the Seventies, he has a genuine love for the popular music of those two decades.
His special love of the 70's is reflected in his show called 'That Seventies Sound' which he produces and presents each and every week. 

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Hostage of the Mind

A passionate and emotional book of poetry describing the struggle coping with illness

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A Look Inside: My Parkinson's Life in Poetry 

Born in London, Dean G. Parsons is a renowned psychotherapist and writer now living in the beautiful county of Suffolk; the home of many of his ancestors. Diagnosed in 2017 with Parkinson's Disease, Dean uses narrative and richly descriptive poetry to tell a story of his relationship with Parkinson's going back to his childhood and even further back in his family history. If you have Parkinson's and you want to have a useful way of describing your illness to others, Dean's book would do it for you. This frank and often gritty account of life as a person with Parkinson's gives insight into a challenging life experience but, importantly, sends a message of hopefulness and optimism, too. Simply gift it to someone special or keep it handy on the shelf or coffee table and encourage your visitors and guests to read Dean's experiences.

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Park Climate change 

This is a poetry collection by myself and 8 other Parkinson's Poets. We feel strongly about climate change and the environment and wish to add our voices to those seeking these issues to be treated seriously. Park Climate Change hopes to inform and enlighten with details on how our interactions affect nature and to convey the urgency that some of our politicians and leaders wish to dismiss. I hope you will read the book and join with us to help us shake the world.

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